ISSN 2146-8346
 

Original Research 


An exploratory study of socio-emotional experience and coping in mothers of cleft lip and palate children

Anisha Juneja, Akanksha Juneja.

Abstract
The aim of the present study was to understand the emotional and social experience of mothers of children with a congenital cleft lip and palate condition including an assessment the coping responses employed in dealing with the stressful condition. The research was designed primarily in the qualitative mode because it caters to a subjective experiential realm of the mothers. The participants were 14 housewife mothers with their affected child in the age range of 0 to 5 years residing in Delhi and its outskirts through purposive sampling. The measures included an Interview Schedule designed specifically for the study and Coping Responses Inventory Adult Form. The interviews were transcribed and thematically analysed. The results show that most mothers experienced disbelief and denial with gradual acceptance of child as destiny but associated with physical and financial stresses. Presence of good social support resulted in attributing the cause to external factors and improved the quality of life. But the gender constructions produced differential anticipated consequences for a cleft affected girl compared to a boy. Avoidance coping responses were observed to be observed primarily. The study has mental health implications. Interventions need to be developed to help parents deal with the impact the social stigmatization and physical concerns of the cleft lip and palate condition.

Key words: cleft lip and palate, socio emotional experience, coping


 
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REFERENCES
1. Hildebrandt, K.A. & Fitzgerald, H.E. (1983). The Infant’s Physical Attractiveness: Its Effect on Bonding and Attachment. Infant Mental Health Journal, 4(1), 3-12. [DOI via Crossref]   
2. Lorenz, K.A. (1943). Die angeborenen Formen mSglicher Erfahrung. Zietschrift fur. Tierpsychologie,5.
3. Scheirla, T.C. (1965). Aspects of stimulation and organization in approach/withdrawal processes underlying vertebrate behavioral development. In D.S. Lehrman, R. Hinde and E Shaw (Eds): Advances in the study of behavior. New York: Academic Press.
4. Hess, E.H. (1970). Ethology and developmental psychology. In P Mussen, Carmichael (Eds): Manual of Child Psychology. New York: Wiley.
5. Bennett, S.L. (1971). Infant-caretaker Interactions. Journal of the American Academy of Child and Adolescent Psychiatry, 10, 321-335. [DOI via Crossref]   
6. Bell, R.Q. (1974). Contributions of human infants to caregiving and social interaction. In M Lewis and L Rosenblum (Eds): The effect of an infant on its caregiver: The origins of behavior. New York: Wiley.
7. Eibl-Eibesfeldt I (1975). Ethology: The biology of behaviour (2nd ed). New York: Holt, Rinehart & Winston.
8. Boukydis, C.F.Z. (1981). Adult perception of infant appearance: A review. Child Psychiatry and Human Development, 11(4), 241-254. [DOI via Crossref]    [Pubmed]   
9. Office of Population Censuses and Surveys, Congenital Malformation Statistics, 1988 MB3 No. 4. London: HMSO.
10. Cobourne M.T. (2004). The complex genetics of cleft lip and palate. European Journal of Orthodontics, 26, 7-16. [DOI via Crossref]    [Pubmed]   
11. Coleman, J.R. & Sykes, J.M. (2001). The embryology, classification, epidemiology, and genetics of facial clefting. Facial Plastic Surgery Clinics of North America, 9, 1-13.
12. Merritt, L. (2005). Understanding the embryology and genetics of cleft lip and palate. Advances in Neonatal Care, 31, 125-140. [DOI via Crossref]   
13. Radhakrishna, U., Ratnamala, U. & Nath, S.K.(2006). Genomewide scan for nonsyndromic cleft lip and palate in multigenerational Indian families reveals significant evidence of linkage at 13q33.1-34. American Journal of Human Genetics, 79(3), 580-585. [DOI via Crossref]    [Pubmed]    [PMC Free Fulltext]   
14. Kent, G. & Thompson, A. (2002). The development and maintenance of shame in disfigurement: implications for treatment. In P. Gilbert & J. Miles (eds.), Body Shame (pp. 103-116). Hove: Brunner-Routledge.
15. Clarren, S. K., Anderson, B., & Wolf, L. S. (1987). Feeding infants with cleft lip, cleft palate, or cleft lip and palate. Cleft Palate Journal, 2(4), 244-249.
16. Hoekelman, R.A., Adam H., Nelson N.M., Weitzman M.L. & Wilson M.H. (2001). Primary Paediatric Care. London: Mosby.,
17. Dahllof, G., Ussisoo-Joandi, R., & Idelberg, M. (1989). Caries, gingivitis, and dental abnormalities in preschool children with cleft lip and/or palate. Cleft Palate Journal, 26,233-237.
18. Pope, A.W., Tillman, K. & Snyder, H.T.(2005). Parenting stress in infancy and psychosocial adjustment in toddlerhood: a longitudinal study of children with craniofacial anomalies. Cleft Palate Craniofacial Journal, 42, 556-559. [DOI via Crossref]    [Pubmed]   
19. Baker S.R., Owens, J., Stern, M. & Willmot, D. (2009). Coping strategies and social support in the family impact of cleft lip and palate and parents’ adjustment and psychological distress. Cleft Palate Craniofacial Journal, 46(3), 229-236. [DOI via Crossref]    [Pubmed]   
20. Slutsky, H. (1969). Maternal reaction and adjustment to birth and care of cleft palate children. Cleft Palate Journal 6, 425-429.
21. Massengill, R. & Phillips, P. P. (1975). Cleft palate and associated speech characteristics. New Jersey: Cliff Notes, Inc.
22. Johannson, B. & Ringsberg, K. (2004). Parents’ experiences of having a child with cleft lip and palate. Journal of Advanced Nursing, 47(2), 165-173. [DOI via Crossref]    [Pubmed]   
23. White, W., Eiserman, W., Meddoe, M., Vanderberg, R. (2005). Perceptions, expectations, and reactions to cleft lip and palate surgery in native populations: A pilot study in rural India. Cleft Palate Craniofacial Journal, 42(5), 560-564. [DOI via Crossref]    [Pubmed]   
24. Nelson, J., O’Leary, C. & Weinman, J. (2009). Causal attributions in parents of babies with a cleft lip and/or palate and their association with psychological well-being . Cleft Palate Craniofacial Journal, 46(4), 425-434. [DOI via Crossref]    [Pubmed]   
25. Hall, S., French, D.P. & Marteau, T.M. (2003). Causal attributions following serious unexpected negative events: a systematic review. Journal of Social and Clinical Psychology, 22, 515-536. [DOI via Crossref]   
26. Bernstein, N.R. & Kapp, K. (1981). Adolescents with cleft palate: Body-image and psychosocial problems. Psychosomatics, 22, 697-703. [DOI via Crossref]   
27. Benson, B.A., Gross, A.M., Messer, S.C., Kellum, G. & Passmore, L.A. (1991). Social support networks among families of children with craniofacial anomalies. Health Psychology, 10, 252-258. [DOI via Crossref]   
28. Chibbaro, P. (1994). Understanding and managing stressors facing the pediatric craniofacial patient and family. Plastic Surgery Nursing,14, 86-91. [DOI via Crossref]   
29. Endriga, M.C. & Kapp-Simon, K.A. (1999). Psychological issues in craniofacial care: state of the art. Cleft Palate Craniofacial Journal, 36, 3-11. [DOI via Crossref]   
30. Sank, J.R., Berk, N.W., Cooper, M.E. & Marazita, M.L. (2003). Perceived social support of mothers of children with clefts. Cleft Palate Craniofacial Journal, 40(2), 165-171. [DOI via Crossref]   
31. Speltz, M.L., Morton, K., Goodell, E.W., & Clarren, S.K. (1993). Psychological functioning of children with craniofacial anomalies and their mothers: follow-up from late infancy to school entry. Cleft Palate Craniofacial Journal, 30, 482-489. [DOI via Crossref]   
32. Coy, K., Speltz, M. L. & Jones, K. (2002). Facial appearance and attachment in infants with orofacial clefts: a replication. Cleft Palate Craniofacial Journal, 39, 66-72. [DOI via Crossref]   
33. Locker,D., Jokovic, A., Stephens, M., Kenny, D., Thompson, B., Guyatt, G. (2002). Family impact of child oral and oro-facial conditions. Community Dentistry and Oral Epidemiology, 30, 438-448. [DOI via Crossref]   
34. Klein, T., Pope, A.W., Getahun, E. & Thompson, J. (2006). Mother’s reflections on raising a child with a craniofacial anomaly. Cleft Palate Craniofacial Journal, 43, 590-597. [DOI via Crossref]    [Pubmed]   
35. Speltz, M.L., Endriga, M.C., Fisher, P.A. & Mason, C.A. (1997). Early Predictors of Attachment in Infants with Cleft Lip and/or Palate. Child Development, 68(1), 12-25 [DOI via Crossref]    [Pubmed]   
36. Palkes, H.S., Marsh, J.L. & Talent, B.K. (1986). Pediatric Craniofacial Surgery and Parental Attitudes. Cleft Palate Journal, 23(2), 137-143.
37. Kramer F,J., Baethge, C., Sinikovic, B. & Schliephake, H. (2007). An Analysis of quality of life in 130 families having small children with cleft lip/palate using the impact on family scale. International Journal of Oral and Maxillofacial Surgery, 36, 1146-1152. [DOI via Crossref]    [Pubmed]   
38. Jackson, J.S., Antonucci, T. C., & Gibson, R. C. (1991). Social relations, productive activities and coping with stress in late life. In M.A.P. Stephens, J.J., Crowther, S.E., Hobfoll, & D.L. Tennenbaum (Eds.): Stress and Coping in Later-Life Families. New York: Hemisphere.
39. Lai, A.C., & Salili, F. (1997). Parental stress, coping styles & social supports in Chinese families with Hepatitis-B-carrying children. Current Psychology, 16(1), 65-84. [DOI via Crossref]   
40. Broder, H.L. (2001). Using psychological assessment and therapeutic strategies to enhance well-being. Cleft Palate Craniofacial Journal, 38, 248-254. [DOI via Crossref]   
41. Han, H. R. (2003). Korean mothers’ psychosocial adjustment to their children’s cancer. Journal of Advanced Nursing, 44(5), 499-506. [DOI via Crossref]    [Pubmed]   
42. Jun, W.P., Kuan, C.S. & Lynn, N.L. (2008). A preliminary study on the social and emotional experiences of parents of children with cleft lip and palate. Sunway Journal, 5, 82-96.
43. Park, C.L., Cohen, L.H. & Murch, R.L. (1996). Assessment and prediction of stress related growth. Journal of Personality Assessment, 64, 71-105. [DOI via Crossref]   
44. King, G., Cathers, T., Brown, E., Specht, J.A., Willoughby, C., Polgar, J.M., MacKinnon, E., Smith, L.K. & Havens, L. (2003). Turning points and protective processes in the lives of people with chronic disabilities. Qualitative Health Research, 13, 184-206. [DOI via Crossref]    [Pubmed]   
45. Johnson, M.P. & Baker, S.R. (2004). Implications of coping repertoire as predictors of men’s stress, anxiety and depression following pregnancy, childbirth and miscarriage: a longitudinal study. Journal of psychosomatic obstetrics and gynaecology, 25, 87-98. [DOI via Crossref]   
46. Moos, R.H. (1993). Coping Responses Inventory Adult Form Professional Manual. USA: Psychological Assessment resources, Inc.
47. Braun, V. & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77-101. [DOI via Crossref]   
48. Lindemann, E, (1965). Symptomatology and management of acute grief. In H.J. Parad (Ed): Crisis Intervention: Selected Readings. New York, Family Service Association of America.
49. Hinde, R. (1974). Biological bases of human social behavior. New York: McGraw Hill.
50. Crnic, K.A., Friedrich, W.N. & Greenberg, M.T. (1983). Adaptation of families with mentally retarded children: a model of stress, coping and family ecology. American Journal of Mental Deficiency, 88, 125-138.
51. Frey, K.S., Greenberg, M.T. & Fewell, R.R. (1989). Stress and coping among parents of handicapped children: a multidimensional approach. American Journal on Mental Retardation, 94, 240-249.
52. Kapp-Simon, K.A. (1995). Psychological interventions for the adolescent with cleft lip and palate. Cleft Palate Craniofacial Journal, 32, 104-108. [DOI via Crossref]   
53. Sadler, C. (2005). Palatable truth. Nursing Standard, 19(43), 25-26.
54. Holahan, C.J. & Moos, R.H. (1987). Risk, resistance, and psychological distress: A longitudinal analysis with adults and children. Journal of Abnormal Psychology, 96, 3-13. [DOI via Crossref]    [Pubmed]   
55. Spriestersbach, D. C. (1961). Counseling parents of children with cleft lips and palates. Journal of Chronic Disease, 11, 244-252. [DOI via Crossref]   
56. Wong, Y. F & Chan, W. C. (2005). The quantitative experience of Chinese parents with children diagnosed of cancer. Journal of Clinical Nursing, 15, 710-717. [DOI via Crossref]    [Pubmed]   
57. Danielson, C.B. (1985). Families, Health and Illness: Perspectives on Coping and Intervention. Baltimore: Mosby.

How to Cite this Article
Pubmed Style

Juneja A, Juneja A. An exploratory study of socio-emotional experience and coping in mothers of cleft lip and palate children. J Behav Health. 2014; 3(1): 65-70. doi:10.5455/jbh.20140121121020


Web Style

Juneja A, Juneja A. An exploratory study of socio-emotional experience and coping in mothers of cleft lip and palate children. http://www.jbehavioralhealth.com/?mno=45681 [Access: June 18, 2018]. doi:10.5455/jbh.20140121121020


AMA (American Medical Association) Style

Juneja A, Juneja A. An exploratory study of socio-emotional experience and coping in mothers of cleft lip and palate children. J Behav Health. 2014; 3(1): 65-70. doi:10.5455/jbh.20140121121020



Vancouver/ICMJE Style

Juneja A, Juneja A. An exploratory study of socio-emotional experience and coping in mothers of cleft lip and palate children. J Behav Health. (2014), [cited June 18, 2018]; 3(1): 65-70. doi:10.5455/jbh.20140121121020



Harvard Style

Juneja, A. & Juneja, A. (2014) An exploratory study of socio-emotional experience and coping in mothers of cleft lip and palate children. J Behav Health, 3 (1), 65-70. doi:10.5455/jbh.20140121121020



Turabian Style

Juneja, Anisha, and Akanksha Juneja. 2014. An exploratory study of socio-emotional experience and coping in mothers of cleft lip and palate children. Journal of Behavioral Health, 3 (1), 65-70. doi:10.5455/jbh.20140121121020



Chicago Style

Juneja, Anisha, and Akanksha Juneja. "An exploratory study of socio-emotional experience and coping in mothers of cleft lip and palate children." Journal of Behavioral Health 3 (2014), 65-70. doi:10.5455/jbh.20140121121020



MLA (The Modern Language Association) Style

Juneja, Anisha, and Akanksha Juneja. "An exploratory study of socio-emotional experience and coping in mothers of cleft lip and palate children." Journal of Behavioral Health 3.1 (2014), 65-70. Print. doi:10.5455/jbh.20140121121020



APA (American Psychological Association) Style

Juneja, A. & Juneja, A. (2014) An exploratory study of socio-emotional experience and coping in mothers of cleft lip and palate children. Journal of Behavioral Health, 3 (1), 65-70. doi:10.5455/jbh.20140121121020





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